Short and Sweet

This week has been great even though it's only Thursday. You know how you have those days where you just want it to be over with?

Tuesday was definitely not one of those days. It was Moebius Syndrome Awareness Day and seeing all the people that were wearing purple made my heart swell. 

Thank you to all those people who did wear purple; I know I'm not the only one who appreciated it. It was amazing seeing all those people, some I did not know, wearing purple to spread acknowledgement of Moebius. 

My mom didn't know about the existence of Moebius Syndrome until I was ten years old and just wow. It's an amazing feeling knowing you're not alone in the world. 

You're never alone. 

When I went to my first Moebius conference, I still remember my mom and I sitting with Starbucks in our hands, looking at people and being like: do you think they're here for the Moebius conference? Do they have Moebius too? 

Never will forget that feeling. 

I know this isn't one of my best blog posts but I just want to thank everyone for wearing purple. I appreciate it so so so much. 

Love always, 

Zayne

Moebius Awareness Day Comin At You

In less than a week, it'll be one of my favorite days of the year to look forward to. I'm being serious when I say I think about this day in July when the day is in January.

Moebius Syndrome Awareness Day.

One of my favorite reasons why I just love spreading the word about this isn't just cause I have it; it's cause I love spreading awareness and having people acknowledge its existence. I bet if you walked up to a complete stranger and be like "Yo homie what is Moebius Syndrome?" there's a chance they'd have no idea what Moebius is.

(If you need more information go to http://moebiussyndrome.org/about-moebius-syndrome/what-is-moebius-syndrome/ )

Also think you're a hippy or something if you just causally greet them with "yo homie" so don't do that FYI.

Once my friend and I were talking and I just started talking about Moebius Syndrome which I had not known that he had a project for a teacher about doing a presentation about a certain syndrome.
Needless to say, he chose to do his whole presentation over Moebius Syndrome.

I kinda felt awesome.

Another reason is because it honestly makes me feel all tingly inside seeing people wear purple that day. In seventh grade, it was the first year I wore purple and spread the word for Moebius Awareness Day.

We had these shirts customized to say 'I Smile For Zayne' for my close friends only to this to blow up farther than my mom and I both thought about. This store in my town literally ran out of purple shirts to make more so they used pink.

When I arrived at school and saw all the purple, I literally cried. 

The point is: it'd not only mean so much to me if you wore purple but it'd mean so much to others who have Moebius as well.

SPREAD THE WORD TO WEAR PURPLE JANUARY 24TH WHUCH IS THE UPCOMING TUESDAY!

SHARE THIS LINK, POST ON FACEBOOK ABOUT IT, TWEET IT, INSTAGRAM IT, TUMBLR IT EVEN THOUGH I HAVE NO CLUE HOW YOU USE TUMBLR BUT JUST LET PEOPLE KNOW TO WEAR PURPLE!!!

Love always,

Zayniator 💖

P.S this is a throwback to seventh grade year!

P.S it'd mean so much to see if you wear purple and post it to your social media 💜

*Something about school in the title*

This week I honestly prayed to God about finding inspiration to write about and as always he has answered. Last week's blog post blew my mind at the reactions I got and I have something simple to say to that: I may not be able to change the world but if I make an impact in someone's life, that's enough for me.

I seem to get nervous when I talk to people I'm not close to. Whenever someone tries to make a conversation with me I always find myself panicking slightly inside asking myself what should I say after this? Social Anxiety. 

At school, I mostly tend to myself and my best friends. I'm not outgoing. I can't just walk up to somebody and create a conversation. I wish I could. I wish I was one of those people that could talk to anyone and not feel a slight bit nervous. 

Last year I took a seat at a lunch table to wait for my two best friends in the lunch line. While they were in the lunch line, I was eating my food in peace until these three people came and sat at my table. They acknowledged my existence for a second before carrying on their conversation. 

My hands were earthquakes under my lunch tray that's how nervous I was. They literally weren't even speaking to me and I was internally going into panic mode. Way to go me... 

Today as I write this on Wednesday, I found out today that I was chosen for student of the month for my sophomore class which was TOTALLY unexpected. When I heard my name on the announcements for this I seriously said "What!" out loud. 

Highlight of my day right there. 

Anyways, I know I feel so out of place at school a lot of the time and I tend to stay in my own bubble but it feels good to know that I get acknowledged. 

Also, please be kind to everyone. No matter who they are or if it's even their job; say thank you. Last week this substitute was passing out worksheets for us to do and I told her a simple thank you. 

Her face lit up and she told me I was the only one who had told her that all day. It made me feel good.

And that's all for this week's blog. 

14 DAYS UNTIL MOEBIUS SYNDROME AWARENESS DAY THE DAY TO WEAR PURPLE!!! 

Love always, 

Zayne

Late Night Thoughts #1

Sometimes I forget I'm breathing. Doesn't that sound crazy? The thought of forgetting that my own lungs, my own body, is functioning with the task of making my heart beat and my lungs engulfing air and exhaling.

When I was in sixth grade, I had pains that felt like a knife stabbing into my chest whenever I breathed in. Sometimes it lasted for a few seconds, other times it felt like someone grabbed my insides and was challenging me to take another breath.

The pains slowly faded into darkness along with time pass.

We are bone in skin trained to get along in this time.

Our brains are never ending mazes, growing more each day.

Eyes are colors with emotions as if they were paintings.

Hands can be used to create masterpieces or be used to speak in a language without words being spoken.

Every single person is an original masterpiece; some are being painted in as they go while some are still trying to find the colors to fit themselves into the museum of life.

Do you know what makes us go on with our lives?

Breathing.

-Thoughts of Zayne at ten at night in December.